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124 | navigating social media, research, and BIPOC representation in the autistic community with Kaligirwa @blackspectrumscholar
ABOUT THIS EPISODE (+ scroll for resources) 👇
Dr. Tay is joined by Kaligirwa @blackspectrumscholar, an AuDHD communication researcher, to discuss the intersection of neurodiversity and research, with a particular emphasis on BIPOC representation within the autism community. Kali shares her personal journey of discovering her autism diagnosis and her efforts to highlight the representation of Black autistic individuals on social media. The conversation covers broad topics such as the history of autism subtypes, the diagnostic challenges faced by BIPOC individuals, and the complexities of clinical diagnosis. Dr. Tay and Kali also delve into the importance of evolving our understanding and terminology around autism to build greater acceptance and support as well as how to use social media as a tool to learn while also knowing its limitations.
00:00 Introduction and Guest Overview
01:19 Host's Background and Podcast Purpose
02:22 Guest's Personal Journey with Autism
04:49 Challenges and Representation in Autism Research
07:14 Social Media and Misinformation
11:31 Navigating Research and Personal Experience
26:11 Discussion on Autism Subtypes and Diagnosis
30:53 Understanding PDD-NOS and Stigma
31:47 Challenges with DSM-5 Levels
32:58 Regional Differences in Diagnoses
33:44 Functional Assessment Over Levels
35:24 Issues with Profound Autism Label
37:18 Spiky Profiles and Individual Differences
39:22 BIPOC Representation in Autism Conversations
39:55 Cultural Barriers to Diagnosis
42:57 ODD and PDA: Shifting Perspectives
49:53 Complexities of Diagnosing Anxiety
51:24 Finding Affirming Practitioners
53:28 Conclusion and Final Thoughts
RESOURCES
⚡️ connect with Kaligirwa on Instagram and TikTok @blackspectrumscholar and check out her resource library
⚡️ want to learn more about Dr. Tay's Whole Family Approach and current services offered? visit drtaylorday.com
⚡️ join the Evolve Facebook community to participate in the episode Q+As >> facebook.com/groups/evolveautism
⚡️ learn from me and submit your questions [could be featured on a future episode] >>
